Disease awareness
Multi-country educational campaign on a rare hematology condition
We were tasked with the challenge of educating specialists on a rare hematology condition. Through close collaboration with key opinion leaders (KOLs), we developed a 10 minute disease awareness video, localized it into 11 languages and shared it to our hematologists and GPs.
This case study highlights how we successfully bridged knowledge gaps, improved access to care for people with rare diseases, and enabled healthcare providers to make a real difference in managing acquired aplastic anemia.
Objectives
Increase knowledge of hematologists in the diagnosis and management of this rare disease, which affects 2–6 new patients per million population annually.
Increase knowledge of primary care physicians about this disease to help determine the clinical signs and laboratory parameters that should influence the decision to refer the patient to an expert center for definitive diagnosis and treatment.
Target audience
General practitioners, hematologists, and internal medicine specialists across 11 European countries.
Campaign strategy
Promote a CME educational video with a KOL for 12 months.
Conclusion
Our campaign successfully addressed the challenges of limited scientific knowledge and delayed diagnosis in rare diseases, educating 14,000 medical professionals across 11 countries.
With short-form educational content, we generated over 170 hours of viewing time, watched by thousands of doctors across Europe. Italy leads in engagement, and watch time continues to grow. While medical knowledge often can't be packaged into easily consumable social media videos, it can be made more interesting. And the more niche the topic, the harder we have to try if we want to meaningfully impact the lives of patients with rare diseases.
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